Don't throw that away!

That moment when you realize how amazing your child really is.  Abigail watched a few videos and has decided to pull this lawnmower engine and make something out of it.

You mean you want to pull apart  an engine instead of sitting inside and watching to..... YES!!!

What in the world is going on?!

I am sure that is the question of the day!  Haven't said much lately because there is really not much to say.

Emma is about the same.  Getting along just fine, still having a few issues is things being weak or falling asleep but nothing that is slowing her down much.  She is at open gym basketball tonight and I always love to see that!

We are waiting on appointment at Mayo clinic and in the mean time Grandpa Bill helped us to find a Doctor in Spokane Washington who specializes in cases similar to Emma's.  I faxed all of her stuff to that doctor and now we are once again waiting to hear.  We just keep praying that God will put us exactly where he needs us to be to get the best answers and care.

Abby is riding her horse like a crazy person.  Can't believe how well she is doing with him, they are an amazing pair.

Craig is in overhaul and so that makes for long weeks for him.  We always look forward to his days off and they are far between and very few this time of year.

I just wanted to also say how much we appreciate everyone praying.  We also continue to pray that God will work in our lives to keep us in a close relationship with Him.  We pray that for ourselves and for our girls. 

Love you all!

A New Week

Today Emma is back at school with NO wheelchair and NO crutches.  It is a good week.  Always good to be up on your feet!!

Walk and Roll Baby!!!!

2014 Women's Run

We had such a great time and Emma finished by walking herself over the finish line.  Was a great day!

Praise God!

Today Emma woke up determined to walk.  She worked very hard in PT and went to school on crutches this morning.  She is making huge improvements each day.  We are thanking the Lord greatly for His blessings.

Progress

Today we had right leg lifts without stimulation, left leg lifts with stimulations and even some progress in walking with a walker!!  Praise the Lord!!

Slow but sure

Each day in PT Emma is making progress.  it seems really show, but it is improvement.  God is in control, even of the timing of her improved walking.

Small Improvements

Today we did have some improvement at PT.  Emma was able to engage her quads without stimulation and so that is a good thing.  Our plan... one day at a time!

PT progress

There was definitely more reaction on the right side than the left.  Not a huge improvement but she was able to do a small muscle reaction when it was stimulated.  We go again in the morning.

PT

We are in for Physical Therapy today at noon.  They will try the e-stim to see if it helps her brain messages to connect to her legs. 

The Lord's Day

Today is much the same.  Emma is still unable to use her legs.  She can use them a little to help hold herself up when you transfer her to the couch or back to the wheelchair.

In church today we sang two songs that reflected well where we are today.

Count your blessings name them one by one.   Count your blessings see what God has done.
When we look, we see the blessing and the way God is at work we are reminded once again that God is in control and that he has a plan.  He is growing our family closer to Himself and there is no greater blessing.

Love lifted me.  Love lifted me.  When nothing else could help, Love lifted me.
The love of Jesus is truly what is sustaining us during this time.  We see his love in so many ways and there is no end to how blessed we are.

So on this Lord's Day we are thankful for the blessing we have and we are blessed with grace beyond measure as we see the love of the Lord in all that is happening in our lives.

A bit more info

Not sure how to start this one... a little more detail from yesterday.  He, the Dr, is now using the word conversion.  My understanding is that it refers to how her brain passes messages to her muscles... it isnt getting messages through.  They have upped her headache meds a little but there is no real explanation.

Backstory

On January 21st of this year Emma had stroke like symptoms on her left side.  After spending a night in icu and many tests we were sent home with instructions to call in a week if she still couldn't feel her left leg.  As you can imagine I lasted about 30 seconds with that information.
I began calling and contacted a local physical therapist.  If I ever forget to mention it, Jennie is AMAZING.  After a week of no feeling in the left leg we saw a neurologist.  Emma was diagnosed with hemipeligic migraines.
Over the next several months this has seemed like a likely diagnosis.  Her  headaches continued and she would have parts of her left side "fall asleep" 3 to 4 times per week.
Over the last week this has started to present differently.  On Tuesday a similar event happened with stroke like symptoms on her right side.  Within the course of the day her right arm became useable but it moved into her left leg.
At this point she is primarily in a wheelchair and unable to use her legs.

Blond Joke Anyone?

And....

Everyone had to get in on the action

Sometimes a change is needed

What will happen?!

Dr. results

Today we didn't learn anything new   He thinks that her brain is just blocking the connection with her muscles.  It is likely due to stress.  We sent in some preliminary information to Mayo Clinic.  We should hear from them next week.

Neurology

Here we are... waiting for our appointment

Post #1

I will do my best to keep you updated on Emma's progress here.  Today we see Dr. Mosser again and so we will see how that goes.  I will update you as we know.  Right now, Emma is still in a wheelchair and unable to hold her own weight with her legs.  She has a great attitude and for that I am thankful.